Showing posts with label exercise. Show all posts
Showing posts with label exercise. Show all posts

Thursday, June 7, 2018

Here's to a Healthier Me

Jarrod got me a Fitbit for my birthday! I've been contemplating getting one for years. I even asked on a CF forum one time if anyone had one, did they use it much, did they like it; stuff like that. And that was THREE years ago. I don't make decisions lightly...

I know it's still shiny and new right now, but it's definitely getting me up off my butt from my desk during work. Since I work from home, I have very few reasons to get up from time to time. It's not like I'm walking to someone's office down the hall.

The sleep tracking has been surprisingly interesting! I'm not sure how accurate it is on tracking my REM sleep, but I believe it when it shows how much I waver between "light sleep" and "deep sleep." It makes sense, too, and explains why some days I feel more rested than others.

So far, I'm really liking it. Like I said, I know it's still new, but I can see this helping me continue to get off my butt and move more. With the ability to set multiple different goals, it's motivating to see you're close to your goal, and to keep going so you reach it.

And today I took another big step: I joined the Y.

I went with mom to the YMCA on Monday to check it out. I've been feeling for a little while now, and especially since I concluded my recent tune-up, that I needed to get back to a gym. I notice how things are more difficult, like coming up the stairs or getting groceries out of the car. All of the upper body strength and step strength I built up all the way back in pulmonary rehab is long gone. Anything I may have continued at other gyms is gone as well; it's been at least a year and a half since I've been to a gym to lift weights.

But I need someone to go with, otherwise I reason myself out of it and stay home. So my plan is to go with mom a couple days a week, and to treadmill at home the other 4 days. It's great that I have the ability to go during the afternoon when it's less busy, too. I don't like working out around tons of people in case I end up coughing a bunch.

But I'm excited. I'm ready to get back to working out. I think the Fitbit is going to help give me a little nudge, too, so I'm glad I have that for extra motivation. It's probably a good thing all of this is coming together right now, right at the end of my tune-up when I'm feeling my best. Sometimes you really have to strike while the iron is hot, while you're motivated to make a change.

Even so, it's a hard step to take. It's hard for me to keep myself going sometimes, because the improvements I make are SO small, not even detectable for weeks if not months. But I have to keep believing I can improve, I have to believe my lungs will be better for it. It's hard to explain to you how much every day I worry if I'm getting worse. With every task that causes me to get a little winded, I'm analyzing and trying to compare to how I felt last time. Did this leave me more out of breath than yesterday? Last week? Maybe not? I thought I could do this more easily... And with exercising, my gains are so tiny, it's hard to keep going and to believe it'll make a difference when no difference is seen. But, I have to almost remind myself, I'm operating on 30% lung function here... nothing is going to be easy. Things are going to make me feel short of breath.

But here's to making a change! Let's hope in three months I can look back and say "Wow, what progress I've made!" And let's also hope I don't catch a cold because I swear, Murphy's law or something, every time I resolve to do something like this, I come down sick.

Tuesday, September 12, 2017

Done with meds

I've reached the end of my latest hospital stay/doing home meds. I had a PFT today and it was the same as last week. Which... is a tad disappointing, that another week's worth of medicines didn't really move the needle. However, I do feel better this week, as far as getting around easier. So at least there's that.

I'm not quite back to where I'd like to be, and in looking at my numbers, I see the last time I reached over 0.90 was a year ago. For all of this year, my baseline has been comfortably parked at 0.88. I realize, that's only 0.02 less, but that's still a big deal to me. Every little bit counts, and I'm gonna keep trying for over 0.9 as long as I can.

But, I know that keeping up with my exercise will give me the best shot I have of reaching those kinds of numbers, and even if they're unattainable, my quality of life will remain greatly improved because of it.

The problem with exercise is that the progress is so gradual it's barely noticeable, you know? Ugh, it sucks. I think, by nature, we like to see results in the things that we do. And I think this explains why it's just so damn hard to stick to an exercise routine or even get started in the first place. I've realized it's also a challenge for me since I go through this virtual reset every six months when I have to drop everything and go in the hospital, or even when I end up sick it becomes hard to exercise; it's hard to form true, lasting habits when that happens.

We also aren't very good at remembering things, like the day to day stuff. Hardly anyone, with probably the exception of some individuals on the spectrum, could tell you what they had for dinner two weeks ago. Likewise, it's hard to always remember where we started, versus how far we've come when it comes to things like exercise or whatever life improvement you might be pursuing. It's hard to see the benefit of working out for ten minutes more, versus calling it quits a little early and skimping here and there. But in order to gain ground, one must stay diligent.

Sunday, February 14, 2016

The Driveway

This morning was kind of a big deal. It snowed an inch or two, and it was the perfect day to stay in and bake cupcakes (or brew beer, if you're Jarrod.)

So Jarrod made us breakfast and then went downstairs to brew. In the meantime I did my treatment as normal, but I was having a pretty good morning, I wasn't coughing a ton... 

So I had a crazy idea... I decided I was going to try to shovel the snow off the driveway. And I did! I shoveled the driveway! I've never done that since we moved here. I had to take one break, to come inside and sit with my oxygen on for about 5-10 minutes, then I went back out and finished. I was getting pretty worn out during the last half, and audibly reminded myself "You can do this... There's just a little bit left." And then I was done and I came inside to sit with my oxygen hose on again while my heart slowed down and my oxygen sats. came back up. 

I went down to tell Jarrod, since he had no idea, and he was surprised! And very happy for me. I am so damn proud of myself, I can't even tell you. I feel like I've had a slight grin on my face all day. Take that, CF! 

I did that! 

Tuesday, October 20, 2015

Super duper checkup!

I had a checkup in Columbia today, and it was great! I'm so happy and really proud of myself and my hard work.

Last time I was there in August, my lungs were not so hot. I was having FEV1's of 26%, which is not cool and not where I want to be. In addition to that, I wasn't feeling that great either. I didn't have a ton of energy, at least not the normal amount I was used to, and I got short-of-breath easily. Of course, it was to be expected with numbers like what I had.

Despite having such low lung numbers, I just didn't feel sick. I hadn't caught anything, neither did I feel it necessary to do antibiotics at the time. My doctor agreed, and I resolved to try and beat this on my own. I knew it was going to be tough, since I didn't have a lot of wiggle room per se.

The other problem I had was my weight was down, which could have very well contributed to my lower lung numbers. I've experienced that before when I was at Cardinal Glennon. There was a time my weight was down and I was basically told "Either you get your weight up on your own or we're going to really get serious about a g-tube." I put the pedal to the metal, ate a bunch of ice cream, added in extra calories, and gained weight.

But for the past two months I've been really struggling. I would gain a couple pounds, then lose it immediately the next week and be right back at square one. It was hard. I know I've said it before, but it is exceedingly true, gaining weight for me is just as hard as it is for others to lose. So if you know how it feels to lose 2 pounds, then gain back 3 in a week, just put that in reverse and you have my situation; it is just as frustrating and hard to deal with.

I've been working really hard to get more calories in my day. I was also working to keep up with walking on the treadmill to get my lungs breathing better, and a couple weeks ago I finally started going back to the gym on a regular basis. And things were starting to improve.

Finally in the past couple weeks, my weight started to come back up. And when I hopped on the scale today in clinic, I was glad to see it hadn't changed; even went up a little.

Then I did my PFTs and was so relieved that my numbers were back in the 33% area, and I even reached 1.00 (as in one liter of air in the first second [FEV1]).

In addition to that, it was time for my yearly oral glucose tolerance test, which I completed last Friday. The results were good and my blood sugars are normal, so once I again I have avoided diabetes for another year! So that was a relief.

So yeah: my weight is up, my lungs are better, I'm not so short of breath, my blood sugars are in check, I got my flu shot (Did you get yours!?), all good news all around! I am elated. I realize that this won't always be the case, and there will be times—as there have been in the past—where despite everything you do, things just don't work out and CF messes up your life. But for now, I'm going to bask in the joy of today and my good news.

Sunday, October 11, 2015

A Fresh Start

I'm feeling hopeful at the moment.

On Tuesday, I went to our gym and cancelled our membership. Our friends cancelled theirs at the end of September and frankly, we haven't been there in a month. The main reason we joined that particular gym was so we could work out with our friends, because everyone knows it's best to have a gym buddy and help keep you going. But since that was no longer a factor, there really wasn't any reason to stay at that gym.

Right after I cancelled our membership there, I signed us up at a different gym. I realize that might sound odd, since we've been lagging at our previous gym, but we both want to make going to the gym part of our lives. Last week, we went to check out this new gym right down the road from our house. Cleanliness and germs were becoming my biggest gripes of our now-previous gym because no one EVER wiped down equipment (obviously, that has to be a concern for me.) There weren't any wipes, to make it easy, there were only a handful of spray bottles with some sort of cleaner in them, and no one ever used them.

After visiting the new gym, which was clean and emphasized people wiping off the machines, our old gym looked grimy and kind of gross.

I think I'll feel more comfortable in this new gym, and it is most definitely more clean and less germy. Furthermore, it's right down the road from us. Yes, we live in a small city but still. We don't even need to drive through any stoplights to get there; if we don't want to we can take all roads through the subdivisions around our house! And if Jarrod ever wanted to, he could go before work because he wouldn't be backtracking and adding drive-time.

So right now I'm feeling hopeful. Maybe changing up the scenery was just what I needed to give me a new kickstart. I was recalling the other day how it felt to lift weights and how accomplished I felt when I could start to lift more. It was a good thing. And I can't deny that I felt better when I was lifting weights at the gym, too. I'm excited to start getting back to that. I've gone to the new gym two times, and I am hoping to keep my momentum going.

Tuesday, June 30, 2015

CF Awareness

Last week was the annual Race Across America, aka RAAM, which is the crazy extreme bike ride across the entire country from California to Maryland. As usual, our town was along the route and once again the local bike shop was one of the time stations. Riders and their support crew from all over the world came right through our town. I think that's just so cool.

Our time station here is unique, because it's actually a destination instead of just some mile marker or a tent along the side of the road, and I have personally heard people say it's like an oasis and they think they're dreaming. The volunteers provide food, drinks, a little pool to cool off in, not to mention the bike shop to fix things, and—hopefully—good company and a change in the faces you see every day.

Last Wednesday I decided on a whim that I would help out for the afternoon. I talked with people from Australia, Brazil, Japan, and Britain. As Vicky, a lady who does this every year for as many hours a day as she can, says "I can't travel the world, but here the world comes to me."

So this one crew came in, and I'm talking to this guy, welcoming him and letting him know where he can find the food and drinks, the usual drill. He holds out his hand and says "Hi, I'm Jay." I said "I'm Jamie," and he chuckled and said "Oh, that's easy." He was their head crew chief, I found out, and I was asking where they were all from. Their group was from everywhere, from Arizona to New York, to Florida, plus a couple Europeans. He himself resides in Colorado.

I then asked what charity they were riding for and he says "Cystic fibrosis."

I think my mouth kind of fell open, I stopped and was like "Really?" And he, confused a little, said "Yeah."

I then told him "I have CF." He kind of put his arm around me and had the same awestruck facial expression I did when he initially said it. I almost couldn't believe it, and he walked me over to show me their van and there was the CFF logo right on the side.

So then he was asking me about what gene mutations I have, if I did the vest, how I'm doing, if I'd be able to take any of the new drugs they're coming out with, which are all great questions and clearly this guy actually knew about CF. I told him about my recent hospitalization and said I was doing well and getting back to the gym. I asked how he got involved with raising money for CF, and I believe he said a friend of his has a son with CF.

He wanted to introduce me to a bunch of people in their team, he said they'd want to meet me, and we obviously told them that I had CF. I thanked them for riding and such and they were all so nice. You hardly ever meet a group of crabby people during this RAAM, but this group was really fun and groovy. They hung out for a while too while waiting for their teams—typically some of the crew will venture ahead to take a small break when they can, so they were ahead of the people actually riding the bike.
This is Jay, my new best friend that day.
A little later Jay and I were chatting again, and he said "I'm sorry, I'm kind of tearing up. This is just..." and he shook his head in disbelief; I said "I get it, I think this is so great and I am SO happy we were able to cross paths." They were called Love, Sweat, and Gears (and in bike nerd-ness, they were also cool because they had a team riding on tandem bikes, which you definitely don't see every day.)

Augh... it was just the coolest thing! I mean, how awesome that I just happen to be working at a time station for this random bike ride at the exact time that a team comes through and they're raising money for CF? And I happen to strike up a conversation with their crew chief? I mean, how awesome is that!? It was definitely a God moment that all of this came together, clearly we were all meant to meet each other. I still can't get over it... SO COOL!
One of the tandem teams.
Fast-forward to last night, and I went downstairs to treadmill, I turn on the TV and was going to watch American Ninja Warrior while listening to some tunes. So, I can't hear the TV but I see this guy walk up and it says he's from St. Charles, MO, so hey that's cool. And he is wearing a shirt that says "CF Warrior" on it. Obviously that registered in my mind, but CF can stand for a lot of things so I didn't take much pause. Then they launched into his back story, like they do for some contestants on shows like this, and he's talking about his cystic fibrosis. I pulled out my earbuds to listen and wow, also a cool story/God moment.

He talked about how he decided to get in shape and exercise and doesn't need medicines as much to manage his disease (you have to be incredibly fit to do these ANW things [they make it look so easy, but it's incredibly hard stuff.]) And obviously, the commentators honed in on the inspiration part of it and such, but ya know what? It really was inspiring. For me, at least. Especially since I saw this right as I began my own workout, it inspired me to kick it up a notch. And I did: I ran 2 1-minute intervals along with the rest of my walk on the treadmill, and walked/ran a total of 1.35 miles in 30 minutes. Woo hoo! I had a short coughing fit when I was done, but I felt GREAT afterward.

Wednesday, March 25, 2015

Back to the Gym

Last night I went back to the gym; it's been quite some time since I've been there. I've been walking the treadmill at home, but I honestly can't remember the last time I lifted weights.

And I've been feeling it too. There were some days where my muscles would kind of ache, but in a going backwards kind of way; like I could feel the strength draining slowly out or something. Once you do exercise and become more active, you are inevitably more aware of your body and therefore you also notice how you feel when you're inactive.

But it felt really good to go back last night. I don't know what it was, but yesterday morning I just decided "Today I am going. No more excuses." I was happy with the amount that I was able to do, as well. I have lost some strength, but I'm definitely not starting over, so that was good to see.

I don't know why, but it's been really hard lately to feel motivated to exercise. I have to exercise, as you know, but I allow myself a day or two off each week. Lately, it's been more like two or even three days off... which is not a good habit to slip into. I'm working really hard right now to get back on track. And I feel by putting this in writing, it might help me a little more.

I wish I could go lift more today, while I'm pumped up and excited to keep the momentum going, but I think it's best to let my muscles rest for a day, like you're supposed to anyways. My arms are a little tired, so they definitely need a day off. But here's to keeping it up—and if you've been like me, and a little on the lazy side, I challenge you to get back to it, too! It feels really good :)


Tuesday, August 5, 2014

Sugars

The Good News Train just keep rolling, my friends. Choo Choo!

I redid my glucose test yesterday (the one where you fast, they take your blood, you drink the super sugar water, then they take your blood again later.) Last year, my new doctor had me do one with the suspicions that I might have CF-related diabetes.

That time, my fasting number was normal, but my post number was high, yet not high enough to declare I had diabetes. I was in this odd gray area called "pre-diabetes."

I got my results today, and my fasting number is still normal, but my post number was only 103! Normal is between 65-130, pre-diabetes is 130-200, and 200 or over is diabetic. So I'm not even pre-diabetic anymore! Not even borderline close!

I thinks this shows two things:

  1. The exercise is helping! Seriously, if you find yourself diabetic or almost there too, exercise. It really really helps. 
  2. That my doctor's theory that I have diabetes when I am sick is also most likely true. Last year when we did this test, I was sick and on meds much more often. This time, I have only had that one little blip. The test shows an average of your blood sugars over the past three months (it has something to do with how quickly your body turns around and generates new red blood cells, I think) and since my sugars haven't been crazy due to illness, this was a more accurate test.
It's such a blessing that I don't have to worry about this yet. I was prepared for this test to go the other way, to show that I had diabetes now. And I was mentally ready and at peace about it, now that all the changes in my life have slowed down a lot. 

So yeah, awesome news! I think we are going to celebrate with some sugar... in the form of Dairy Queen Blizzards!

Saturday, August 2, 2014

5 Kilometers!

I DID IT!
"I did it!"

I couldn't stop repeating "I did it!" this morning and jumping back and forth, to which Jarrod said "You have too much energy." haha. 

But I did it! I completed my first 5k this morning like I hoped to! And I even finished in under an hour, which I did not expect. That's amazing and makes me very happy. Jarrod stayed with me the whole way, and my finish time was 55 minutes 54 seconds, his was 1 second after that. 

It was a cool morning with a LOT of fog and I think that made for a great turnout; many, many people showed up. They have been doing this pre-fair event for 18 years now, but I believe this is the first year with a 5k. I'm sure they'll keep it, because I would guess that more people did the 5k than the other option, which was a 5-mile course. They said it was the first year they've ever seen people show up in long sleeves, it was that chilly for August. (However, I don't know how you could do this in long sleeves... once you're moving you're much warmer and sweating.)

According to the race results, I was 144th out of 158, which is partially a lie. There were many more people doing the 5k than that; there must have been many of them that did not have bibs to track their time. Also, my pace was 18 minutes per mile, which means that on average we were walking over 3 mph, which I'm impressed with. We jogged for a couple chunks of the course on some of the flat parts, and I was surprised at how much those small jogging sessions didn't wear me down. I mean, I know a lot of my limits breathing-wise, so I could gauge when to slow back down to make sure I wasn't dragging or exhausted the rest of the time.

Photo from emissourian.com of us
approaching the finish line.
But it was great! Although, I can't say it was exactly easy. I was breathing heavily for probably 1/2 to 2/3 of it, and the final half mile or so was difficult. As we neared the finish line, which was an uphill incline, we heard the announcer say that it was still 55 minutes, and then we were like 'Hey, it's not even an hour yet! Okay, let's finish!' So we picked up the pace a little bit. When we finished, most people were still there, grabbing food or drinks and watching the rest of the runners/walkers come in. And even though most of these people didn't know me, and didn't know what a big deal this is for me, and didn't know that I was doing this with one-third of my lungs working, some of them were cheering us on or just taking a moment to look our way and smile or give a thumbs up, small gestures to say "Way to go, good job!" 

Because no matter who you are, I feel everyone who runs and participates in these understands that everyone has to start somewhere, and it doesn't matter whether you're first or last, what matters is you tried and Good-job-to-you because you finished too! 

Monday, May 19, 2014

Evaluation, Checkup, and Working Out

It's been a while since I wrote anything, and I actually have a lot to catch you up on. For the past two weeks, I've done a lot of tests, seen a lot of doctors and nurses, and gotten a lot of good news. So we'll start at the very beginning, a very good place to start...

Three weeks ago, we went for my evaluation for lung transplant. I didn't tell many people, didn't tell my workplace the reason I had to have so many tests done, and realized after-the-fact that there were some people who I thought knew about it, but didn't.

It was four days of tests and meetings. I was planning to write about the whole thing, but I'll spare you the details unless you really want to know (I'm perfectly fine sharing, it's just a long story.) In short, I had 10 different tests, was stuck with a needle 7 different times, and met with 4 different people. My poor veins, they are still recovering and I still have bruises; it sucks having shit for veins. I was also radioactive for a couple days, which is something cool I'd like to slip in. I had to go to nuclear medicine both days for tests that involved inhaling or injection of a radioactive isotope. So they give you the isotope, then a machine takes pictures of you and the gamma rays you emit. Pretty cool. What this and some of the other tests showed is that my heart is in tip top shape for transplant!

Tuesday was the big day we met with the doctor where we got some wonderful news. He said I don't need a transplant now—which is awesome, though I already knew that one. I am way too healthy and can do way too much to need this right now. You might be thinking: Wait, I thought you're pretty sick, why would they make you wait, how are you "too healthy"? Well my friends, the decision to have a transplant can be a tricky one and there is no set formula. You don't want to do it too soon because you are literally trading one set of problems for another, and post-transplant your biggest enemy becomes organ rejection. So they don't want to give you that risk any sooner than needed. I may write more some other time about all that goes into it, but for now we can leave it at that.

He said to keep up the good work and truly felt the exercise and extra vest treatments are really helping. I know that working from home is helping too: I'm not around sick people very often, and getting out of that old building has done wonders for me. We don't have to repeat all these shenanigans again until it is much closer to the time of needing transplant. He said many people hold steady where I am, and it may be years until we need to do this again. But at this time (drum roll please...!) he sees no major reason why I would not be able to receive new lungs when the time comes. When he told me that, I fought back tears of joy.

I realize a lot can change between now and whenever this might happen, but it is a relief to hear I have a shot at a second chance. Now I know what I wanted to know: that if I need it, and provided all my other organs hold up well, I will be a great candidate for transplant.

Then two Tuesdays ago, I went for a regular checkup with my doctor in Columbia. I got lunch at Shakespeare's Pizza, which is a huge perk of having your doctor in Columbia haha. They had nothing but congratulations and praise and good news to give me as well! My weight is up, plus my lung numbers are even BETTER than they were 3 months ago (and remember, that's 3 more months out of the hospital... what is happening to me?!), plus she cleared me to join a gym, plus plus plus! It was spectacular.

I also finished up Pulmonary Rehab that Monday, and could continue on with that at the hospital or move on to a gym. I advocated for the gym because I know I have a lot more potential in me than the nurses at rehab acknowledged. I felt like they were holding me back, and kept telling me that I couldn't do things. I think I will be able to build up a lot more strength in a gym than with an arm bike. So last week, I officially joined the gym Jarrod has been going to, and I think it's going to be good for me.

As one of my best friends told me "Could you imagine a year ago, when you were at Barnes, that you'd be doing this well?" I'd never thought of it that way, but that is so true. I never imagined I could be 5-months post-hospital stay and feel BETTER than I was when I came out of the hospital. Usually, the day you leave the hospital is the best day ever; not just because you're going home, but because the meds have taken care of things and you feel at your best point. Then it's all downhill from there, honestly.

But apparently it's not! It's more like a plain right now, a nice boring Kansas-like plain!

Tuesday, April 1, 2014

No Go

The GO Saint Louis marathon is this weekend, which also means the 5k walk/run is on Saturday. I haven't mentioned anything about my 5k in a long time... because I'm just not going to be ready for it. I haven't been able to train as I'd hoped, and since I still haven't walked much more than 1.5 miles, I don't think it'd be wise to try for 3.1.

But that's okay. I will do a different 5k some other time. The good thing is plenty of these happen year-round, so I'll have lots to choose from. I wanted to do the GO one because I would get a medal for participating. It might not be a big deal for most people, but whenever I finally do this, it will be a huge accomplishment for me. Someday, I know it!

Pick yourself up, dust yourself off, start all over again!

Saturday, March 8, 2014

Happy Saturday

Yesterday morning an inspector from the city came for the inspection of our basement. I didn't know what to expect, but it didn't take very long. Josie could hear him talking to Jarrod in the basement and she kept running down the steps, stay down there for a little bit, give a frustrated high-pitched bark, and run back up. It was funny. Anyways, yay we passed! Jarrod said he had a few suggestions on things, but he passed us. So thank goodness for that, the first phase is officially DONE and in the books. On to phase two.

I finally came up with a Lenten resolution on Wednesday. It's twofold and it will undoubtedly help my health in some way. I decided that on the days I don't go to rehab, I will exercise immediately after work, no waiting around saying "I'll do it later." Then I make sure to get it done and also, hopefully, get in the habit of doing it this way.
The second part deals with eating. It's hard for me to write about my weight, not knowing who might read this. I know so many people are trying to lose weight, but my life depends on me trying to go up on the scale. Let's just say that in order for my BMI to be where it needs to be, I need to gain 10 pounds. If you know how hard it is to lose ten pounds, then flip it around and I guarantee that it is just that difficult for me to gain ten pounds. I know I won't gain that much during the season of Lent, but I need to start eating more as I've been a little lax on snacking and my Ensure drinks lately. So part two deals with that.

Saturday, February 15, 2014

Already Seeing Benefits!

My pulmonary rehab has been going well. After a slow start, I was doubtful as to how much progress I would be making. They started me out walking 2.0 miles per hour on the treadmill for 13 minutes... when I was doing 30 minutes at 2.5 or more at home. But after just under two weeks of it, I have progressed up to doing 22 minutes at 2.5 or 2.6, so it's good. When you combine that with 3 minutes on the arm machine (zero progress there, but that's fairly common) and 14 minutes on the step machine, it's over 30 minutes of exercise. So it's good.

However, I still sometimes wish they would push me a little harder. I know they're used to dealing with mostly older patients with COPD or weak hearts, but my heart is perfectly fine and I just feel I could be doing more. It's something I want to address with my doctor at my re-re-rescheduled appointment this Tuesday.

I'm starting to learn the names of some of the people who are there while I am, most predominantly an older man named Bob and a 50-something man named Greg. There are three nurses who work there regularly, and apparently a couple who fill in when needed though they haven't shown their faces yet.

But today I felt proof that even in just 2 weeks of rehab, I am starting to see some benefits. I ran up and down the stairs 3 different times today while Jarrod was working on the basement. And you know what? I wasn't out of breath! Since I use the step machine, it mimics walking up steps, but without the exertion because you're sitting. So I'm building up those muscles, and today they came in handy.

Thursday, January 30, 2014

Starting Rehab

...but not THAT kind of rehab.

Yesterday was my first official day of pulmonary rehab! Tuesday was my 'setup' day where we went over all of my information, made sure my chart was up to date, and went over the program and what I would be doing.

Every day I do exercises on the treadmill, then the arm machine (that little thing that sits on a table and looks like your arms are pedaling a bike), and a step machine which is like climbing steps but you're sitting. I think they're excited to have me because I'm a slightly different case than usual. I'm excited about it too.

When I walked in, I immediately saw a woman doing crafts to pass the time while her husband was in rehab, talking with another lady about their AARP benefits. Yep, I'm definitely the youngest person there.

The most common reasons cardiac and/or pulmonary rehab is prescribed for heart patients and adults with COPD or emphysema. Even the nurses commented how they weren't sure I was the patient, saying "Your chart painted a different picture." I get that a lot, and my doctor and I have talked about it. It's a blessing and a curse. I look healthy—my skin has good color, I'm young, I'm not overweight, I don't struggle to walk or display problems with my joints. But my insides, mostly my lungs, tell a different story. It is difficult because it takes some mental power on my part to also admit that I'm as sick as I am, when I show no outward signs. But hopefully it'll stay that way for a long time!

Wednesday, January 1, 2014

Jamie's Big 5K

It's snowing right now, yay snow! I haven't gotten a chance to see an updated weather forecast but hopefully it'll amount to something. I believe it is supposed to.

Tonight I had a good walk on the treadmill, which was great because lately I've been feeling a little more 'meh'. But before I took my walk I finaaallllyyyy… wrote out my 5K training schedule! Woo hoo!

Now that I have it down in pen and ink, and have it planted on top of the treadmill, I know what I need to do. On the website for GoSTL they had a suggested training schedule that lasted 9 weeks. I am going to need to ease into it a little more, so I modified it out to start next Monday, which will make it 13 weeks of training. Then tonight I've been reading up on some tips for your first 5K, which were helpful.

  • Mentally break the race out into 4 mini-races, three 1-mile races, then a fourth (and easy) tenth of a mile.
  • Do your first mile slow, pick up the pace for the second, then kick it in gear and try to pass a person in the last mile.
  • When training, develop a brisk walk, then add in some jogging, then add in running as you can handle it.
I'm super excited, and hopefully that'll stay that way and I won't get discouraged. The next thing I've done tonight is research for backpacks for oxygen tanks. I have not needed oxygen while exercising her at home, yet, but I figure I will probably need it for this since it's 3.1 miles. I was happy to see a bunch of options, so looks like that shouldn't be a problem.

Furthermore, if I can get all set up with the pulmonary rehab my doctor wants me to do, that will really help me in training for this because the point of rehab is to build up your endurance. Pulmonary rehab would be three times a week, MWF, and those days coordinate perfectly with my training schedule and what I'm supposed to do on MWF.

Sunday, December 1, 2013

Tomorrow, Tomorrow

I have my PFT tomorrow bright and early. I'm really hopeful about it right now! I just finished a really great walk on the treadmill, and I almost made it for 30 minutes. I had to stop at 27 because I couldn't catch my breath. But I alternated between 5 minutes of slow walking and 5 minutes of fast walking, and right now I feel really good. I don't know why I've never thought of that before, but I ran it past Jarrod, and he agreed it would be something good to try.

I've been just pleading with God that my test tomorrow will be better than last Monday's, that's all I ask. It doesn't have to be back to where I was in August, just a couple points better so I know that I've made a little progress since I've been home.

Right now I'm doing my treatment and preparing for bed. I am quite tired, but hopefully that means I'll fall asleep quickly.

We had Jarrod's family and my family over tonight for a late Thanksgiving, since we didn't get to see any of them actually on Thursday. It was really nice and so great to talk with everyone and see everyone. We don't get to see Jarrod's siblings nearly enough, and even though we were down one brother, it was really nice.


Wednesday, October 9, 2013

Two Wild and Crazy Ideas

I had two crazy ideas today. I them past Jarrod and he's cool with both of them.
  1. I want to dye my hair again. I'm thinking a brown-red/burgundy color. I did highlights/lowlights like that 6ish years ago, but you could hardly see them. With my short hair like it is now, it won't take long for it to grow back out if I don't care for it. Hair is hair, I don't really care.
  2. I want to do a 5K. As I've gotten older, I've wanted to be able to run. I'm one of those weirdos who actually enjoys it. The problem is I'm not very good at it, and my airways and muscles can't keep up. But! Since I've started walking 5 times a week, I can already feel a difference with that, so I don't think a 5K is completely out of the question. I was thinking of a half-marathon, but those can be a struggle for even a healthy person, so scratch that. Jarrod suggested a 5K, and I think a 5K is more reasonable, and I'd still be super proud if I accomplished that!!! I'll need to take it one day at a time, and keep things in perspective, but you never know until you try, eh? The Go! St. Louis marathon weekend is in April, and as part of that, they offer a 5K run/walk. If you're unsure, 5 kilometers is 3.1 miles. So, I have about 20 weeks to be able to run/walk 3.1 miles in less than an hour. They offered a training schedule on their website that lasts 9 weeks. So I'm going to start there and modify it out to fit my needs. I know this is going to take a lot of hard work, a lot of discipline, and commitment; I don't have the best track record with things like this. But I really want to do this. It would be one of those "impossible" things!

Monday, August 26, 2013

Off to A Good Start

We got a treadmill. Sadly, treadmills have gone the way of cell phones in that it is really difficult to find a "basic" one, one without tons of fluff. Personally, I just need something that adjusts speed and incline. But these days, treadmills come with enormous display panels, speakers, built-in fans, music players, trainer settings, various pre-loaded workouts, links to Google maps so you can "walk on a route", color screens, the options for extra features to do iFit with Jillian Michaels, and probably a few other things on the high end models we didn't even consider. However, the extremely few choices that only have those basic components also seemed so cheaply made. Another problem I wasn't expecting was the physical size of the display panels — some of them were so tall, and I am so short, there would be no way I could see over it and see the TV.

We got one that suited me well, without too much fluff, and parked it in the front room/dining room that's not a dining room/piano room so I can easily exercise. I'm thankful for the extra space for it, otherwise we would have had to compromise the office or take down the spare bed.

For me, the key to staying with it is having a TV to watch so the time just flies by. I could be sitting on the couch watching TV, or I could get up and walk for a half hour instead. No big deal.

I am also thankful for my Netflix subscription, who knew it would play such a role in exercising. I have decided on a few shows that will cover my "30 minutes a day" routine I want to stick with:

1. Alfred Hitchcock Presents — I haven't seen many of these, but adding little doses of Hitchcock into my life sounds like some good variety. 131 episodes, 25 minutes each.

2. The Dick Van Dyke Show — I love this adorable show, and now I have a great opportunity to watch it. 159 episodes, 25 minutes each.

3. The Andy Griffith Show — I've seen many, many reruns of this but I think it would be fun to watch them in order. 249 episodes, 25 minutes each.

4. Price Is Right — Because I love game shows. Endless episodes M-F, 40ish minutes each once you cut out the commercials (Do you have diabetis?)

So yeah, I have over a year's worth of old TV shows to work with at the moment. Does anyone have any other suggestions for some shows to check out? Leave me a comment if you do!

Sunday, August 25, 2013

Yay Home!

It's so nice to be back home. We are finishing meds at home this week. I am still renewed with hope about how things will turn out this time, and it is so refreshing to have this new 'attitude' about things. I never realized how much my doctor's outlook would affect my own. It just seems like my new doctors care a little more and have much more hope for my future, which in turn has given me the positive take on everything.

I was so very excited last night because I was able to take a fairly brisk walk with the dog for almost 1 mile! I could barely eek out a quarter-mile prior, so I was exuberant once I was finished and made it back home, realizing "I made it!"

Unfortunately, it's going to be the hottest week of the year here, which I'm not looking forward to. Not only do I have a giant sticker on my chest, in a way, I don't get to shower much with giant sticker/IV site on my chest, and mega humidity makes everyone feel gross. Yay... Plus, my choice of clothes is limited because there are only so many shirts that have a neckline high enough to cover up the site, pretty much all t-shirts and a few polos, but no sleeveless shirts which is what I'll be wanting most this week. I dress super casual while I do home IVs.

Monday, February 18, 2013

Back to Gym Class

I hated gym class in school. Not only because it just wasn't what I was into, but because I sucked at it. But the one thing I used to be decent at, if there was one part at all, was the stretches you did to warm up. And the only reason that was true was because of dance.

Well... in an attempt to vary my daily exercising a little, instead of going downstairs and doing the elliptical, I decided to do some old, grade school stretches.

Let me tell ya, I am beat. Have you tried to do any of those things lately? Holy cow! It is so much harder than I remember.

I did 20 jumping jacks (fine), then some arm circles (easy), then some leg stretches (definately not as flexible as I used to be), a few other stretches, then tried 10 crunches (wow...), and then I tried 10 push ups (insane). The crunches were darn near impossible. And the push ups, I didn't really even come close to the ground, so maybe I pushed myself up a difference of one inch. Heck, I don't know. But it wasn't much.

Wow... I almost feel light-headed from this stuff. I mean, these measly little stretches we used to laugh at in gym class totally kicked my butt!